Learning disability and autism resources

These are a collection of documents and resources that might be of use to autistic people and/or people with a learning disability across Frimley ICS. This area covers Bracknell Forest, Slough, Windsor and Maidenhead, North-East Hampshire, Farnham and Surrey Heath.

What is the learning disability register and how do I join it?

The dynamic support register might be able to help you avoid a hospital admission. Self-referral process is now live. 

Email the completed form to frimleyicb.dynamicsupportregister@nhs.net 

Going into hospital? A hospital passport can help healthcare staff support you more effectively. 

What is an annual health check? Easy read leaflet about Annual Health Checks, produced by Mencap. 

More information on Annual Health Checks for patients with learning disabilities can be found here: Learning disabilities - Annual health checks - NHS.  

This toolkit has been created together with people with learning disabilities, families, learning disability support staff, and healthcare professionals. It includes resources and approaches to support staff with end of life care planning with people with learning disabilities.

Bowel Cancer

Easy read guide to having a colonoscopy  

Breast Cancer 

Easy read guide to breast screening 

Beyond Words, Easy Health and the film made by and for women with learning disabilities in partnership with NHS Bristol.

https://breastcancernow.org/about-breast-cancer/primary-breast-cancer/supporting-someone/supporting-people-with-learning-disabilities/

CoppaFeel have developed with Ansar Projects and Orchid which includes going for a mammogram, know your body, self-checking and signs of changes for breast cancer: https://coppafeel.org/resources-for-people-with-a-learning-disability/.

Cervical Cancer 

What is cervical screening? - NHS 

  • All women aged 25 to 64 are invited by letter to cervical screening to check the health of their cervix.  Cervical screening used to be called a smear test.
  • Everyone with a cervix should go for cervical screening
  • The cervix is the opening to your womb from your vagina
  • It’s not a test for cancer, it’s a test to help prevent cancer
  • During the screening appointment, a small sample of cells will be taken from your cervix.
  • The sample is checked for certain types of human papillomavirus (HPV) that can cause changes to the cells of your cervix.  These are called “high risk” types of HPV.
  • If these types of HPV are not found, you do not need any further tests.
  • If these types of HPV are found, the sample is checked for any changes in the cells of your cervix.  These can be treated before they get a chance to turn into cervical cancer.
  • the nurse or doctor will tell you when you can expect your results letter.

Accessible cervical screening with the right support for people with a learning disability Accessing cervical screening with the right support for people with a learning disability (YouTube video)

Easy read guide to cervical screening 

Read clinical publications, research and additional resources that support the ReSPECT process.

Patients, carers and healthcare professionals can access patient guides, leaflets, resources for young people, digital top tips, information for care homes and more via the links below, and catch up on the latest research and findings to do with ReSPECT. 

What digital flagging means for patients